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View Full Version : Want to help me find a Neurosurgeon?



yvonnefoong
21-01-2010, 02:47 PM
Hello. I am considering the possibility of treating my Brachial Plexus tumors locally. I need to find a Neurosurgeon who is experienced in dealing with NF-related tumors.

Anyone can develop tumors at the brachial plexus but tumors caused by my genetic disorder -Neurofibromatosis Type 2 - are stickier than others. Since NF tumors arise from the nerve's Myelin Sheath, forcibly removing them can damage the originating nerve. The tumors may also grow to engulf other nerves nearby. So the surgeon needs to be very meticulous and gentle, someone used to dealing with NF2 tumors. Someone who won't take chances at the expense of my livelihood.

Nerves of my right brachial plexus innervates different group of muscles in my right hand, and I am right handed. Some of these nerves also innervate my lungs, diagphram, heart and right pupil.

Can you help me find a Neurosurgeon who has the personaility traits I described above in Malaysia? But please don't just point fingers and ask me to go here and there. Try speaking with the doctors on my behalf and ask about their experiences - if they are confident in removing NF tumors of the brachial plexus and whether they realize that NF tumors have a different texture from non-NF tumors.

It doesn't matter whether they work at private or public hospitals. It is the person that I am concerned about.

My usual surgeons at HEI remove NF tumors daily which is why I have been going to them with the peace of mind. But if we can also find a suitable Neurosurgeon in Malaysia, that will be helpful in the long run/

Sentinel
21-01-2010, 03:05 PM
There used to a team who was considered the best in town - neurosurgeon Richard Veerapan and emdocronologist Arlene Ngan. I understand Richard has migrated to Canada and Arlene has retired. But I am sure they have the right people to recommend afterall these two were considered the "sifus"...

yvonnefoong
21-01-2010, 10:28 PM
Hello again. Meanwhile, I have proceeded and updated information to my campaign. So we will work with the assumption that the next surgery is going to be done at HEI too. Because we don't have time to waste. What if the tumor becomes critical and my breathing becomes more difficult before we find a good enough local surgeon? After posting what I did above, I read and read it again, and I realized how big the stake is. I only have one chance. Once damage is done to the nerves, they cannot be undone. Nerves cannot regenerate.

Sorry ar. I hope I did not come across as "nothing better to do".

While raising funds, many people would ask me why don't I do the surgery locally and I'd have to explain it which can be emotionally draining. For awhile yesterday, I considered doing this surgery locally. But at the end of the day, I will have to bear the consequences with my life.

But if you do come across any local surgeons able to deal with these tumors well, please let him or her know of my case so that we may together consider the viability of treating these tumors here.

palmdoc
22-01-2010, 07:24 AM
Hint on locating such (and similar) information:
The MMR has a LIst of Medical Professional Societies with Webpages (http://medicine.com.my/wp/?page_id=16) and from there you'll note that there is a Neurosurgical Association of Malaysia link and from there you can see they have a list of members and also a contact page.
HTH

usehead
22-01-2010, 07:32 AM
sorry to hear that u have such a serious health dilemma. to find the best health provider is very challenging. afterall, health is like gold/money - if u entrusted it to a wrong person, u will lose it fast. good wishes to u. hope u could come to the few good sapiens

yvonnefoong
23-01-2010, 12:00 AM
Thank you for the encouragements and also thank you Palmdoc for the link.

I am sending my scans to a neurosurgeon for his evaluation at Apollo Hospital in Chennai India. His team has been treating my Malaysian friend with NF2 outstandingly.