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View Full Version : The Stem Cell Research - Save Lives with Cord Blood Banking



drewkool
06-05-2006, 09:22 PM
A new born baby's umbilical cord blood is rich in stem cells. Stem cells are the body's 'Master' cells that may differentiate (develop) into other cell types including bone, heart, muscle, nerve, skin and blood cells, making them extremely useful in treating many deseases.

Beacuse cord blood can only be collected when your baby is born, parents have only one opportunity to save this precious resource for the family.

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Darah tali pusat bayi yang baru dilahirkan amat kaya dengan sel stem. Sel stem adalah sel 'induk' badan yang dapat menbeza-bezakan kepada jenis-jenis sel yang lain termasuk tulang, jantung, otot, saraf, kulit dan sel darah, menjadikannya amat berguna untuk merawat pelbagai jenis penyakit.

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Chinese - sorry I'll work on that if i've got time to go searching for a chinese word editor.

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Definition from Wikipedia:

Stem cells in animals are primal undifferentiated cells that retain the ability to divide and differentiate into other cell types. Medical researchers believe stem cell research has the potential to change the face of human disease by being used to repair specific tissues or to grow organs.


Details here as i can't copy entire of my blog (http://www.hiipie.com/blogs.php?id=13&q=13) at here where i find it quite useful to share.
If there are majority who know about this, we can start discussing it too. You may find plenty of resources including how,what,where, list of diseases & etc about Stem Cell Research simply by typing a few keywords in search engine.

Disease treated with Stem Cells (http://www.cryocord.com.my/faq_application.asp)

drewkool
06-05-2006, 09:52 PM
Diseases Treated with Stem Cells
Although not all diseases treated with stem cells have been treated specifically with cord blood stem cells, doctors have been using cord blood in lifesaving treatments since 1988. And recently, scientists have discovered some amazing new possibilities for treating diseases and injuries in the future.


Acute Leukemias
Acute Biphenotypic Leukemia
Acute Lymphocytic Leukemia (ALL)
Acute Myelogenous Leukemia (AML)
Acute Undifferentiated Leukemia

Chronic Leukemias
Chronic Lymphocytic Leukemia (CLL)
Chronic Myelogenous Leukemia (CML)
Juvenile Chronic Myelogenous Leukemia (JCML)
Juvenile Myelomonocytic Leukemia (JMML)

Myelodysplastic Syndromes
Amyloidosis
Chronic Myelomonocytic Leukemia (CMML)
Refractory Anemia (RA)
Refractory Anemia with Excess Blasts (RAEB)
Refractory Anemia with Excess Blasts in Transformation (RAEB-T)
Refractory Anemia with Ringed Sideroblasts (RARS)

Stem Cell Disorders
Aplastic Anemia (Severe)
Congenital Cytopenia
Dyskeratosis Congenita
Fanconi Anemia
Paroxysmal Nocturnal Hemoglobinuria (PNH)

Myeloproliferative Disorders
Acute Myelofibrosis
Agnogenic Myeloid Metaplasia (Myelofibrosis)
Essential Thrombocythemia
Polycythemia Vera

Lymphoproliferative Disorders
Hodgkin's Disease
Non-Hodgkin's Lymphoma
Prolymphocytic Leukemia

Phagocyte Disorders
Chediak-Higashi Syndrome
Chronic Granulomatous Disease
Neutrophil Actin Deficiency
Reticular Dysgenesis

Liposomal Storage Diseases
Adrenoleukodystrophy
Gaucher's Disease
Hunter's Syndrome (MPS-II)
Hurler's Syndrome (MPS-IH)
Krabbe Disease
Maroteaux-Lamy Syndrome (MPS-VI)
Metachromatic Leukodystrophy
Morquio Syndrome (MPS-IV)
Mucolipidosis II (I-cell Disease)
Mucopolysaccharidoses (MPS)
Niemann-Pick Disease
Sanfilippo Syndrome (MPS-III)
Scheie Syndrome (MPS-IS)
Sly Syndrome, Beta-Glucuronidase Deficiency (MPS-VII)
Wolman Disease

more ... (http://www.cryocord.com.my/faq_application.asp)

durkheim1
06-05-2006, 11:56 PM
Thanks for the info.

It is very useful (although i can't understand the medical terms).

I've heard of stem cells and things on umbilical cord storage especially in the treatment of leaukemia or medical conditions related to blood.

And I also heard that the stem cells can be used for treatment for next of kin or closest relatives e.g. among siblings. I wonder how far can the family tree goes that can be treated by stem cells. Definitely a leap in medicine science.

But the cost for the storage of umbilical cord is quite prohibitive. Apart from the normal one time fee, there are annual fees as well.

cskok8
07-05-2006, 08:49 PM
The key word here is "possibilities". I am not sure what diseases can definitely be treated with your own stem cells, but the leukemias come to mind. Instead of looking for a compatible donor, just use your own stored cord blood. Issues to consider:

There is ONLY once chance to collect cord blood - at birth
What are your chances of contracting one of those treatable diseases
How many treatable diseases will there actually be (as opposed to "possible in the future)

durkheim1
07-05-2006, 11:06 PM
When I was born, such technology may not have existed. Even if it did, my parents can't afford to do that.

Its an opportunity for our children if we as parents can afford the potential high cost. Just like insurance. But insurance is not transferable, whereas, a stored stem cells may help our closest kin.

siewjang
08-05-2006, 04:18 PM
This I picked from somewhere...
"Given the difficulty of making an accurate estimate of the need for autologous [donation from self] transplantation and the ready availability of allogeneic [donation from sibling or unrelated person] transplantation, private storage of cord blood as "biological insurance" is unwise. However, banking should be considered if there is a family member with a current or potential need to undergo a stem cell transplantation."

And I also read (you have to ask the experts to confirm) that after being frozen in nitrogen, there may be an expiration date. They can confirm 10 years. Beyond that, still ongoing tests.

Guys this cord blood for the moment is use for treating Leukemia or Thalasemia and post chemotherapy but the future is unknown. The potential for this blood is unknown yet. So collecting cord blood is not for this near future but for 20-50 years down the line. See no body know the future right but the technology seems to be heading this way. So any one decided for the cord blood collection must think what is the benefit for there children maybe not for 1 to 5 yrs but beyong. See freezing technic I think can be almost forever probably so far the evidence is for 10 years but is ongoing research. So no body got answer for that now.

drewkool
09-05-2006, 01:33 AM
What i see in this is a key asset, or should i say first insurance to be purchased for a baby in near future.

it is quite true that it is once and for all, & the maintenance could be costly. who knows what comes after the introduction of such biotech. i'm keen to check it out.

GreyShadow
02-12-2008, 03:33 PM
sorry for being skeptical here

why i feels like this thread is trying to promote the cord blood collection service from a certain company, ie cyrocord.com.my eh?


Btw, do you know government hospitals already banned the stem cell companies from their premises?
And gomen already issue a warning about stem cells collection, but I can't remember about the specific details already.

chin_wan
02-12-2008, 06:34 PM
A google search on this subject gave me the following:

http://medicine.com.my/wp/?p=1073
http://medicine.com.my/wp/?p=2078

ESLord
03-12-2008, 12:59 PM
I had my boy's stem cell collected0- he was born last year.
It cost Rm 2500- for entry package and another Rm 250 per year.... or something of that range. Yeah- it is not cheap and the there were comment that their claim on deseases could be treated is a little exallerated. This was even said by Dr Chua when he was still the health minister 2 years back.

However- it is just like buying an insurance... the just in case....

The gynea that i(my wife) had in Assunta, sort of like gave a neutral stand on it... they did not promote, nor discourage. Just up to the parent to decide.

avusblue
03-12-2008, 05:10 PM
Stem cell banking should NOT be considered as insurance.

Why? Insurance specifies what you get at the end - a payout of a specified sum. Cord blood banking is more on possibility - it is not a guarantee of a specified payout. Its like buying an insurance policy that tells u they will pay in a kind of money (say, monopoly money) that may or may not be accepted by other people in the future. See the difference?

There's tons of research on the net about stem cell banking. Most of the non-commercial reports will state that it is not advisable, and not feasible. I'll post these links up later.

I did a lot of reading on this topic quite recently, and will elaborate further if there is interest. What I really disliked was the way the sales personnel from the various stem cell banking companies locally made you feel like you're being a bad parent if you did store your kid's stem cell. Anyway, that was my experience.

Our gynae is also a professor gave us his opinion, and it went something like this: For private stem cell banking, it is not feasible. However, done on a public level, eg, by the govt, it increases the chances of it being put to good use. However, even countries like the USA has not done this on a wide scale, and it is with good reason. His conclusion is, for parents who have more money than they know what to do with, go ahead and bank it. He recommended we spent the money on education instead. We enquired to donate our kid's cord blood to the national bank, and he informed us there was none in Malaysia :(

Star: November 23, 2007, Cord blood storage questionable http://thestar.com.my/news/story.asp?file=/2007/11/23/nation/19557230&sec=nation

There's other more reputable reports available on the net as well. Do your homework.

tupai
03-12-2008, 06:42 PM
i dunno know much but what i know is that FDA has not fully endorse this thingy...

Many a doctor (except those who had 'signed' up with the cord bank co) stay pretty neutral on this...

there were rumors the stemcord public listed counters are char-keow teow counters lah!

Savior or otherwise...dunno true or not...but i am sure this thingy 1 day will be made in MLM...for mass reach...and unscrupulous people will make all sorta promises, miracles etc and blur sotongs will buy into it :D

Young Blood latotupai :p

palmdoc
03-12-2008, 09:15 PM
A google search on this subject gave me the following:

http://medicine.com.my/wp/?p=1073
http://medicine.com.my/wp/?p=2078

There are more links:

Stem Cell therapy-Myths and Facts (http://medicine.com.my/wp/?p=2769)

Private Cord blood Banking Some Salient Questions and Straight Answers (http://medicine.com.my/wp/?p=2207)

palmdoc
04-12-2008, 06:18 AM
Our gynae is also a professor gave us his opinion, and it went something like this: For private stem cell banking, it is not feasible. However, done on a public level, eg, by the govt, it increases the chances of it being put to good use. However, even countries like the USA has not done this on a wide scale, and it is with good reason. His conclusion is, for parents who have more money than they know what to do with, go ahead and bank it. He recommended we spent the money on education instead. We enquired to donate our kid's cord blood to the national bank, and he informed us there was none in Malaysia :(

I agree 100% with what your gynae said. There is a factual error in your post though - Malaysia does indeed have a fledgling public cord blood bank in the National Transfusion Centre (see http://medicine.com.my/wp/?p=1306 ) but development is way too slow, and I doubt if they are collecting cords from outside HKL. Lack of funding is a big issue. Now imagine how much better if the RM500 million which was slated for the sports centre in London goes to this public cord blood bank!

lady-o-leisure
04-12-2008, 07:54 AM
There is an article on a study done in Taiwan by the Tzu Chi foundation Hospital, which makes me wonder if according to their studies, there seems to be microbial contamination in the cord blood collected, does it affect the cord blood itself?
cord blood study (http://www.ncbi.nlm.nih.gov/pubmed/18581722)

article on Tzu Chi hosp's services and cord blood registry (http://www.buddhistchannel.tv/index.php?id=48,7465,0,0,1,0)

keny
04-12-2008, 10:34 AM
guys,i am an ignorant person but please tell me of someone you know in Malaysia, who keep the stem cells, and later REALLY USED it when the family needs it.

why he uses it? for what kind of disease?

avusblue
04-12-2008, 11:36 AM
guys,i am an ignorant person but please tell me of someone you know in Malaysia, who keep the stem cells, and later REALLY USED it when the family needs it.

why he uses it? for what kind of disease?

Ask the sales people of Stemlife, Cryocord, etc, and they will gladly show you newspaper clipping, etc showing this. What they don't tell you is the full story such as the links that has been posted here. Its a truly emotional time for the parents-to-be, and the salespeople will try to take full advantage of this.

The science behind it is quite amazing, but for it to really work, a public stem cell bank is needed. But I don't think the govt is making any strides in this direction. Saving sick people takes #2 priority over buying new helicopters to fight imaginary enemies.

ESLord
04-12-2008, 04:19 PM
Stem cell banking should NOT be considered as insurance.

Why? Insurance specifies what you get at the end - a payout of a specified sum. Cord blood banking is more on possibility - it is not a guarantee of a specified payout. Its like buying an insurance policy that tells u they will pay in a kind of money (say, monopoly money) that may or may not be accepted by other people in the future. See the difference?

There's tons of research on the net about stem cell banking. Most of the non-commercial reports will state that it is not advisable, and not feasible. I'll post these links up later.

I did a lot of reading on this topic quite recently, and will elaborate further if there is interest. What I really disliked was the way the sales personnel from the various stem cell banking companies locally made you feel like you're being a bad parent if you did store your kid's stem cell. Anyway, that was my experience.

Our gynae is also a professor gave us his opinion, and it went something like this: For private stem cell banking, it is not feasible. However, done on a public level, eg, by the govt, it increases the chances of it being put to good use. However, even countries like the USA has not done this on a wide scale, and it is with good reason. His conclusion is, for parents who have more money than they know what to do with, go ahead and bank it. He recommended we spent the money on education instead. We enquired to donate our kid's cord blood to the national bank, and he informed us there was none in Malaysia :(

Star: November 23, 2007, Cord blood storage questionable http://thestar.com.my/news/story.asp?file=/2007/11/23/nation/19557230&sec=nation

There's other more reputable reports available on the net as well. Do your homework.

One should not just assume that it is Holygrail and the stem cell work miracle can cure all deseases.... This is probably the wrong starting point.

Let's be wise and understand the limitation.

The application is limited for just a few-but very critical deseases. This are normally bone marrow and blood related. It will have wider applications with the current rapid advances in the medical field -looking at 10-15 years.

Insurance has gurantee pay out- normally.
if someone's kid has leukimia, say... and doctor will able to cure him if the stemcell is available- isnt that a payback? What is the price? No one will put a value to that.

If I were to make any purchase- i will judge it on the quality and value of the product, not sales person and how much i hate him. It is the product that I will get and kept for then next 10-15 years afterall.

palmdoc
04-12-2008, 05:24 PM
Just to clarify, if the kid has leukaemia, we would not be looking to use his own cord blood stem cells anyway.
Also for L.O.L.'s post about bacterial contamination - yes, there is always a risk so the collection methodology is important as is the training of the people who perform the collection.

kwchang
05-12-2008, 12:41 AM
Got this link off Google news yesterday - http://www.reuters.com/article/email/idUSTRE4B30PW20081204 - go read it and you should be vary of believeing anyone peddling stem-cell solutions.

This stuff is in its infancy. Maybe your next generation would benefit from it but right now it is either too expensive, have untold side-effects, and probably won't work at all. Most times, the customer don't know enough science to understand what he is in for. And without the adequate science knowledge, he won't even understand what he reads if he googled for it.

avusblue
05-12-2008, 08:42 AM
Insurance has gurantee pay out- normally.
if someone's kid has leukimia, say... and doctor will able to cure him if the stemcell is available- isnt that a payback? What is the price? No one will put a value to that.

If I were to make any purchase- i will judge it on the quality and value of the product, not sales person and how much i hate him. It is the product that I will get and kept for then next 10-15 years afterall.


Insurance policies = U pay X amount per month, when/if u die, they pay Y amount.

Stem Cell = U pay X amount per year, when/if u get sick, they "MAY" be able to use it to cure you. It is not 100% definite that you will be cured i.e. could be as low as a 0% chance.

See the difference? You are buying probabilities, maybes, could-be's. Not a definite return.

Please don't misinterpret that I HATE stem cell salespeople. They are just trying to make a living, and to do that, they can't tell you the whole story or educate you fully about stem cells, as the more you know, it may be possible that the less likely you will buy their sales pitch. It is more of an ethics issue in the industry that I don't agree with, rather than a personal issue.

Kwchang, from the article ... "exploiting hope and ignorance". How sad but true.

layman
05-12-2008, 10:14 AM
What i see in this is a key asset, or should i say first insurance to be purchased for a baby in near future.

it is quite true that it is once and for all, & the maintenance could be costly. who knows what comes after the introduction of such biotech. i'm keen to check it out.

is this an advertisement for stem cell companies?

anyway,you spend tens of thousand of dollars for a dubious 'medical' technology at least for now!!!